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Genetic Disorders

Directory Listing(s)

Fatty Oxidation Disorders
Informational site provides details on newborn screening, on numerous diseases, medical information and support resources such as a newsletter and email List.
http://www.fodsupport.org

Costello Kids
Official site of the International Costello Syndrome Support Group. Includes medical information, photographs and videos, therapy ideas, news, and links.
http://www.costellokids.co.uk

Chromosome 9P- Network
international not-for-profit organization dedicated to educating and bringing together families with children who have Alfi's syndrome.
http://www.9pminus.org

Canadian Association of Genetic Counsellors
works to establish minimum standards of practice, to encourage professional growth, and to increase recognition of the genetic counselling profession in Canada.
http://www.cagc-accg.ca

Alagille Syndrome Alliance
Worldwide support network for people who care about people with alagille syndrome.
http://www.alagille.org/